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Tuesday, September 27, 2011

Tuesday Morning

Tuesday morning. I'm feeling a little closer to normal now, although I can't seem to get enough sleep. My infusion pump is a bit of a pain to carry around all the time. The acyclovir seems to be working since my headache is gone but I feel silly carrying it around in a fanny pack 24/7. I may try to go back to work this afternoon and see how that goes. Thanks for all the concern and caring comments over these past few weeks.

After much delay and despair I sold my Canada vs New Zealand rugby tickets online this past weekend. I really wanted to go but so many things conspired to make it impractical. I sold them to two Canadian girls who went to Wellington only to find the game sold out. They seem happy to have the tickets so I don't feel too bad. I just wish it was me...

I was in charge of getting the kids off to school today. In the end Penny helped me out. Even with her help Carly still missed her bus and I'm only about 50% sure that Andrew is wearing underwear. Good times.

Tuesday, September 20, 2011

Kentucky Fried Chicken Pox

There is a light at the end of the tunnel tonight.

Firstly, I feel MUCH better, pretty much normal in fact. I still have a slight headache and some fatigue but it's nothing compared to what I came in here with on Saturday.

I met with the infectious disease team here at the Foothills Hospital today and they were able to shed some light on my current predicament. Apparently the viral meningitis that I have was caused by some sort of reactivation of the chicken pox virus that I got as a child. I guess once you've had it you always have it and carry it around for the rest of your life like that "participant" ribbon you got for grade 4 track and field. I suppose it saw an opportunity to get back into the action with my recent chemo-induced immune-suppressed state so it headed up to the periphery of my brain to party. For some people a reactivation of the chicken pocks virus shows up as shingles and for others, meningitis.

The plan for me now is to go home tomorrow (it feels like I've been her forever!). I need to stay on the anti-viral acyclovir for another 2 weeks so first thing tomorrow I will meet with home care and the pharmacy and get set up for a pump and some IV drugs to take with me so I can go home and not sit around the hospital for a fortnight bored to death. At this point I will be ready for my release back into society having paid my debt to the great chicken pock (may he fry somewhere in 11 secret herbs and spices).

Monday, September 19, 2011

Back in the Hospital: This Time... Viral Meningitis

I still hate the hospital. But at least this time I'm in a brand new, private room.

Penny brought me in on Saturday evening after I suffered through a day with the worst headache I'd ever had. It was so bad I was vomiting. The pain radiated down my neck into my upper back. I couldn't eat, couldn't sleep, couldn't move. In the ER I got into a bed quickly but didn't seen doctor for 5 hours! When I finally did see the doctor I got pain meds and a CT scan of my noggin. The CT scan was clean (no cancer in the brain!) and showed no bleeding or inflammation. To rule out meningitis they did a lumbar puncture and drained a little fluid. While it did not show any signs of bacterial infection, it did contain some white blood cells which I'm told is indicative of a viral infection. Viral meningitis it is! So, I got moved to an isolation room and put on some heavy duty antibiotics. Since then things have improved slowly but I have barfed more times in the last 24 hours than I care to remember. I am sitting now in a super duper brand new isolation room in unti 64 in the Mcaig tower at the foothills hospital. I'm feeling much better now (headache now 5/10 for pain) and for the first time feel able to talk on the phone and pick up my iPad. I haven't seen my doctor yet today so I don't have a plan but I get the feeling that I will be here for some time.

Friday, September 16, 2011

Who Gets a $200 Parking Ticket?

I do. That's who.

I went to my men's group this morning and parked on a residential street. There was 2 hr parking all along the street even where I parked. But when I left the car and double checked the sign I failed to notice that in addition to the 2hr parking sign, there was also a handicapped parking sign. So when I got back to the car I had a little surprise waiting for me in the form of some paperwork from the Calgary Parking Authority. It was my own fault but that didn't stop the incident from ruining my morning. Isn't $200 a little excessive?

Tuesday, September 13, 2011

The Doctor Is (going) In.

On Monday I had my first meeting with Dr. Buie, my colorectal surgeon, in almost a year. As I detailed in a previous post, I booked this appointment after my latest round of chemo and the subsequent infection of my abscess that followed. We wanted to discuss options for a surgical solution to the problem of this recurring infection. While antibiotics seem to keep the worst of it at bay, it would be best if I could minimize the frequency and duration of the infectious episodes so that my body can concentrate on fighting the cancer. We came up with three possibilities for surgery that could meet our goals.



Option one is the least invasive and in the end, the one that we chose. It entails converting my loop ileostomy to a permanent ileostomy. As it stands now I have an intact intestinal tract but all my stool leaves my body from a loop of small bowel that comes to the surface at my stomach. The loop has a slit in it and the contents empty into a bag. The problem with this is that it is designed for people who will regain complete colon funtion and eventually have it reversed. In my case this might have happened early on but with the complications (abscess/drain issues) this will never happen for me. With a loop ileostomy, if the bag fills up, the pressure build up can force stool or gas into my large intestine and rectum. This, in turn, gets forced into my abscess carrying with it bacteria and causes infections. With a permanent ileostomy, it is presupposed that no stool or gas would enter the lower bowel or the abscess and hence the frequency of infection would decrease. The surgery is short and simple and would required minimal recovery time. The chance of adverse side effects or complications is minimal.


The second option would be to convert my temporary loop ileostomy to a permanent colostomy. This would require entering into the abdomen (big surgery) to bring a portion of the large intestine to the surface forming a colostomy. Essentially this has the same benefits as option one (no stool or gas passing into the lower colon/rectum/abscess) but is a more invasive surgery with a longer recovery time and a higher chance of adverse side effects or complications.


When I asked Dr Buie what he would do for someone in my situation that was completely healthy, he told me about option three. For this case he would do a highly invasive, complicated surgery in tandem with another colorectal surgeon. He would convert me to a permanent ileostomy (or colostomy - my choice) but remove all the remaining colon, most of the rectum, and all of the infected abscess tissue. This option holds the best chance of permanently removing the risk of infection from the abscess but it also carries the most risk. A surgery of this magnitude would entail an extensive recovery period in and out of the hospital. It also carries the most risk of damage to existing structures in the pelvis. The amount of scar tissue there would make it hard to separate the good tissues and nerves from the infected ones. It is very likely that this surgery would result in bladder and erectile dysfunction. The recovery from this surgery and it's likely side effects and complications would very likely interfere with my ability to do chemotherapy and would focus my body's energy on recovery rather than fighting the disease.


So after some discussion, Penny and I landed on option number one. It has the best risk/reward balance of them all. In addition to option one, during the surgery Dr. Buie would look at the abscess from the bottom end and attempt to see the connection between the rectum and abscess. If he can see it he would try to enlarge it so that the fluids in the abscess cavity can drain freely into the rectum. This flow would also serve to discourage bacteria in the rectum from entering the abscess.


Timing for the surgery would be pretty soon. I would have a sineogram this week or next and follow up with Dr. Buie in his clinic shortly after that. Then we could book surgery as soon as he gets OR time and get this thing done. I would guess at a four to six week time frame but that is just a guess. I'm feeling good now and am looking forward to getting this thing done!

Monday, September 12, 2011

Happy Wedding Rod and Sue!

On September 10 Penny's brother Rod got married. They had the wedding at River Cafe on Prince's island in downtown Calgary. We all had a fantastic time and the whole thing went off without a hitch. Congratulations Rod and Sue!

Wednesday, September 7, 2011

Anniversaries

On September 6th 2003 Penny and I got married. Five years later on the same date I was hospitalized and later diagnosed with cancer. So, this time of the year obviously brings mixed emotions. I think it was also about this time a year ago that I found out the median survival for someone with my cancer at this stage is 18 months. The roller coaster of life continues and I have only this to say:





Happy anniversary wife and screw you cancer!

Friday, September 2, 2011

"Daddy I'm going to fly over there to you"

Stupidly, my response to that statement was "Ok". At this time Andrew was on the bar stool at the bar having his cereal. I was standing near-ish when he made the statement but wasn't really paying attention. He then proceeded to leap off the stool towards me with superman-like form. A few milliseconds later, gravity kicked in and he landed on his face, on the floor and his legs flipped over his back and he basically kicked himself in the back of the head. He was stunned at first, then he cried, then he explained how he was trying to fly over and get daddy but it didn't work. Some things you just can't teach, trial and error does a much better job. I think this falls into the category of "epic fail".